The tenth Annual Sickle Cell Illness Therapeutics Conference, to be held just about Sept. 15, will spotlight the latest medical advances and growing treatment tendencies within the discipline of sickle cell disease (SCD).
Going down throughout Nationwide Sickle Cell Consciousness Month, the convention shall be hosted by the nonprofit Sickle Cell Disease Association of America (SCDAA) and the pharmaceutical Global Blood Therapeutics (GBT).
Open to the general public, the convention shall be live-streamed from 9 a.m. ET on the convention’s website and on the Sickle Cell Warriors’ Fb page. With greater than 25,000 members, Sickle Cell Warriors says it’s “the biggest patient-run sickle cell illness advocacy nonprofit on this planet.”
The keynote speaker for the convention is Chiquita Brooks-LaSure, administrator for the Facilities for Medicare & Medicaid Providers (CMS) of the U.S. Division of Well being and Human Providers.
Brooks-LaSure, who has a long time of expertise within the federal authorities, on Capitol Hill, and within the personal sector, served as a coverage official and was one of many people spearheading the Reasonably priced Care Act (ACA), often known as Obamacare.
The occasion will embody panel discussions from physicians, sufferers, advocates, and policymakers throughout the globe, with a selected focus on the influence of the COVID-19 pandemic and vaccination on the SCD neighborhood.
“Previously 12 months, the COVID-19 pandemic has magnified the long-standing inequities confronted by the sickle cell neighborhood and impacted the day by day lives of so many individuals residing with SCD,” Beverley Francis-Gibson, SCDAA’s president and CEO, mentioned in a press release.
“We’re privileged to unite leaders from around the globe on necessary and well timed subjects and create change for the higher,” Francis-Gibson mentioned.
“The convention will present a much-needed discussion board for the broader SCD neighborhood to come collectively and talk about the pressing wants, newest developments, and future prospects as we think about a greater world for folks with sickle cell illness,” she added.
Throughout the convention, GBT will present an replace on the tasks awarded an ACCEL grant below its 2021 Access to Excellent Care for Sickle Cell Patients program. The ACCEL program’s objective is to speed up the supply of high-quality healthcare to folks with SCD.
“Progress within the remedy of sickle cell illness in recent times has supplied hope and optimism for the longer term,” mentioned Kim Smith-Whitley, MD, government vice chairman and head of analysis and improvement at GBT. “However vital gaps in entry to prime quality care and different obstacles proceed to plague this neighborhood.”
An in depth schedule of the convention, together with its audio system, might be discovered (*15*). It’s scheduled to run by means of 3:55 p.m. EST. Moreover GBT, different pharmaceutical corporations growing therapies for SCD that shall be current on the convention embody Agios Prescribed drugs, bluebird bio, Forma Therapeutics, and Imara.
“With this annual assembly now in its 10th 12 months, GBT is happy to as soon as once more accomplice with the SCDAA and Sickle Cell Warriors to make this 12 months’s convention doable — particularly given the dramatic influence that the COVID-19 pandemic has had on folks affected by SCD,” Smith-Whitley mentioned.
“We’re impressed to convene such a various, passionate group of researchers, clinicians, sufferers, advocacy leaders, coverage makers, business representatives and others to tackle the advanced challenges this neighborhood faces,” she added.