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Mum told toddler has just two years left to live claims she couldn’t get GP appointment

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Holly says she tried a number of occasions to see her GP in particular person however was repeatedly turned away

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A mum told her toddler had lower than two years left to live claims she was repeatedly denied face-to-face appointments along with her GP.

Holly Lewis-Vale says she tried eight occasions to see her physician throughout lockdown after her son Gunner developed worrying well being issues however was told it wasn’t allowed.

She’d seen that his head was rising sooner than the remainder of his physique and he had bother respiration.

It turned out the teen, aged 20 months, had a genetic situation which meant his life could be reduce drastically brief.

Mum-of-two Holly and her husband Jamie, 31, declare they rang their GP surgical procedure many times however have been denied a face-to-face appointment due to the c oronavirus pandemic.

“They told me that as youngsters have been carriers, they have been limiting contact,” she told BirminghamLive.

“My husband took him down there at one level to demand that he was seen however he was turned away. They have been all the time useful on the cellphone, however I knew that I wanted somebody to see him.”

Gunner had a hernia and respiration issues and Holly was nervous

Gunner additionally developed a hernia, and Holly despatched movies of it and his laboured respiration to her well being customer however she claims she was nonetheless not supplied a face to face appointment. All well being visits, she stated, have been finished over the cellphone as a substitute.

It was solely after Gunner hit his head when he was studying to stroll in March this yr that Holly took him to A&E at Princess Royal Hospital in Telford.

He had a excessive temperature, so the advisor was known as who by probability had seen two sufferers beforehand with a situation known as MPS and so was in a position to start the analysis.

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Gunner was recognized with MPS sort 1 which suggests his physique is unable to break down sugar, inflicting protein to be saved in his very important organs together with his liver and mind.

His dad and mom have been told that he wanted a stem cell transplant however that nobody within the UK was a match. With out one, his mind would undergo irreversible harm.

With out a stem cell donor Gunner will not live for greater than two additional years

“We didn’t have any worries when he was a new child apart from him failing his listening to checks and a small hernia which we have been told would heal by itself,” stated Holly Lewis-Vale, from Highley, Shropshire.

“It wasn’t till round eight months in the past that I seen his head appeared to be rising sooner than the remainder of his physique.

“The bridge of his nostril was extraordinarily flat which affected his respiration and brought about him to snore loudly.

“It received to the purpose the place I didn’t take him out in dangerous climate as a result of I knew he’d be poorly as his nostril was vulnerable to infections.”

Holly and Jamie have been heartbroken once they acquired the analysis – particularly because it meant their treasured son would have lower than two years left to live if he didn’t get the stem cell transplant.

“With out a transplant, he’d possible solely have one or two extra years left. Listening to that utterly broke me and I just cried all evening,” Holly stated.

The household have been sadly not a match for the toddler however hope a German one will extend his life

“The docs told us it will be utterly life altering. Any harm that has already occurred is irreversible, however we strive to be constructive and give attention to the now,” stated Holly.

“His head is massive due to his physique storing the protein that he can’t break down in his mind. His spleen and liver are enlarged which is why his umbilical hernia was persevering with to develop.”

Since then, Gunner has acquired weekly invasive enzyme therapies at Birmingham Youngsters’s Hospital to handle his situation.

Holly, Jamie and their four-year-old daughter Daisy, have been all examined to see in the event that they have been a stem cell match for Gunner, however none of them have been.

Gunner’s household and workers at Birmingham Youngsters’s Hospital have put out an pressing worldwide seek for a donor. And, at the beginning of June, Holly acquired the information {that a} match had been present in Germany.

If profitable, the process will prolong Gunner’s present life expectancy by seven years.

“It’s been a extremely emotional time for the entire household,” stated Holly. “After I thought we weren’t going to discover a donor I cried all evening.

“I didn’t need to get my hopes up in case something fell via. After I knew it was going to go forward, I breathed an enormous sigh of aid.

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“It’s down to the wonderful work of Birmingham Youngsters’s hospital that we lastly discovered a match in Germany.”

The household will now have to isolate for two weeks on the finish of this month. Holly and Gunner will then go to Birmingham’s Youngsters’s hospital the place he’ll bear chemotherapy for every week in preparation for the transplant.

Gunner might be in hospital for round 72 days relying on how he reacts to the transplant.

Holly stated: “We wish to give attention to high quality (of life) slightly than amount. He’s such a intelligent little boy and has a tremendous bond along with his massive sister. We just need to get him in addition to he may be.”

Due to the continuing pandemic, solely Holly might be in a position to be along with her throughout his time in hospital.

Holly stated: “We’ll be a crew in hospital collectively after which my daughter and my husband might be a crew at house.”

After Gunner’s analysis, Holly began a fundraiser to encourage extra individuals to be part of the stem cell donation register. Solely two per cent of the UK are signed up to the opt-in service.

Thus far over £12,800 has been raised with extra occasions deliberate over the summer season.

A spokesperson for NHS Shropshire, Telford and Wrekin Medical Commissioning Group (CCG) stated: “Though unable to touch upon particular person circumstances, Shropshire, Telford and Wrekin GP practices have made each effort all through the coronavirus pandemic to guarantee sufferers get the care they want regardless of the restrictions which were in place to maintain each sufferers and workers secure.

“The place face-to-face appointments haven’t been acceptable or secure to perform, well being professionals have gone out of their means to make the most effective use of expertise so as to help sufferers and repair customers.

“We want to specific our sympathies to Gunner and his household as they arrive to phrases with managing his situation and want them the most effective along with his remedy.”

A fundraising marketing campaign GunnersGoal has been arrange to assist discover stem cell donors.




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